Dual Diagnosis

Down Syndrome | Autism (DS-ASD) Dual Diagnosis Support Group

Down Syndrome- Autism (DS-ASD) Dual Diagnosis Support Group

Parents of children with a dual diagnosis of Down syndrome and autism disorder (DS-ASD) are especially in need of support from a community as well as resources to support their child and family. Club 21 Learning and Resource Center currently offers a support group for families, which currently meets quarterly. Families come and discuss the issues and challenges unique to the Down syndrome-Autism community and are able to network and support one another.  Experts in the field often come and present on various topics relating to the dual diagnosis.  New members are welcome! If you would like to be put on a list to be included in this support please contact us at info@clubtwentyone.org.

Membership at Club 21 Learning and Resource Center is required. You can pay your membership HERE.

Below are some other resources that we think would be helpful.

A Book that we highly recommend is:

When Down syndrome and Autism Intersect by Margaret Froehike and Robin Zaboreck

SOCIAL MEDIA / GROUPS

– Down Syndrome-Autism Connection Facebook Page

– Down Syndrome-Autistic Spectrum Yahoo! Group

ORGANIZATIONS

– Down Syndrome-Autism Connection (based in Colorado)

– Kennedy Krieger Institute (based in Baltimore, MD)

– National Association for the Dually Diagnosed (based in Colorado)

RESEARCH / OTHER INFO

Autistic Disorders In Down Syndrome: Background Factors And Clinical Correlates - Rasmussen P, Börjesson O, Wentz E, Gillberg C (2007) (PDF)

Assessment - A Case for Neurobiological Work-up in Autism - Vatter G (1998)

Autistic Spectrum Disorders In Down Syndrome: Further Delineation And Distinction From Other Behavioral Abnormalities -Carter JC, Capone GT, Gray RM, Cox CS, Kaufmann WE (2007) (PDF)

Autistic Disorders In Down Syndrome: Background Factors And Clinical Correlates - Rasmussen P, Börjesson O, Wentz E, Gillberg C (2001) (PDF)

Changing Behavior....& Teaching New Skills - Swiezy N (1999)

Creating Support For Families Of Children With Down Syndrome With A Co-Diagnosis: A Survey – Medlen J (1999)

Comorbidity Of Autistic Spectrum Disorders In Children With Down Syndrome - Kent L, Evans J, Paul M, Sharp M. (1999) (PDF)

Down Syndrome & Pervasive Developmental Disorders – Nordhauser M (1997)

Dual Diagnoses - The Importance of Diagnosis and Treatment - Patterson B (1999)

More than Down Syndrome: A Parents View - Gurthie Medlen, J (1999)

Neuroanatomic Correlates Of Autism And Stereotypy In Children With Down Syndrome - Carter JC, Capone GT, Kaufmann WE (2008)

The Recognition of DS in Children with Autism in Children with Down Syndrome: Implications for Intervention and Some Speculations about Pathology – Howling P & Wing L (1996)